We are in Florida this week, enjoying a visit with my grandpa. Gracie is enjoying herself IMMENSELY!! Yesterday, we went to the beach for the first time since the stroke. I was very concerned that she was going to hate it, because she has a hard time with the sun now. I bought her a pair of sunglasses and a cute visor though, and she actually wore them. The kids played in the sand (Josiah ate a pound and a half and is now constipated, LOL), Gracie went right out into the water (with me, of course) and they even saw their first dolphins!! There were three, so close to shore, we thought that one was going to become a landlubber!!
Last night, we visited Bible Baptist Church in Deland. They had a very nice nursery for the kids, but when we were leaving, Gracie made sure to tell us " That was so nice, but it was not MY Baptist church."
I will post pictures as soon as I can. There's no WiFi in my grandpa's neighborhood (the humanity!!), so I am using his computer. I hate to upload all my pictures to him, so I will wait. I actually just read a good post on Yada Yada Yada about waiting on the Lord. Guess I should try it!
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Grace was born at 23 weeks in September of 2006. As a result of her extreme prematurity, she has hydrocephalus (VP shunt) and cerebral palsy. After 126 harrowing days in the NICU, she came home. Overcoming all the odds, she learned to walk, talk, and play like every child. On November 16th, 2009, our lives took another shocking turn. Gracie's shunt failed, and she suffered from a massive stroke. After 13 days in the PICU, 7 days in 1600, and 6 weeks at a rehabilitative hospital, Gracie is once again home. Now, we face SOME of the day to day challenges of parents with a brain injured child -re-learning, therapy, illnesses and seizures. Thanks for joining us on our journey!
"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
thou art my God ,
I will exalt thee."
Grace Elliana
"Even in the valley, God IS good."
Grace was born at 23 weeks in September of 2006. As a result of her extreme prematurity, she has hydrocephalus (VP shunt) and cerebral palsy. After 126 harrowing days in the NICU, she came home. Overcoming all the odds, she learned to walk, talk, and play like every child. On November 16th, 2009, our lives took another shocking turn. Gracie's shunt failed, and she suffered from a massive stroke. After 13 days in the PICU, 7 days in 1600, and 6 weeks at a rehabilitative hospital, Gracie is once again home. Now, we face SOME of the day to day challenges of parents with a brain injured child -re-learning, therapy, illnesses and seizures. Thanks for joining us on our journey!
"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
About Me
- Michelle
- "Whom have I in heaven but thee? and there is none upon earth that I desire beside thee.My flesh and my heart faileth: but God is the strength of my heart, and my portion for ever."
I am a born again child of the King, wife to John, mommy to Grace and Josiah. I started this blog to keep friends and family up to date while Grace was in the hospital. We are home now, but the work has really just begun. Now I share pictures, progress, and sometimes just feelings. Please, read with an open heart and mind.
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