Tonight, we went to the nursing home to see my Aunt Fret. Gracie was all excited, we had visited her before, and she sat in the hallway with us and talked. Well, now Fret is getting ready to meet Jesus. She lays in a bed, very close to the floor, with oxygen on. We walked in, and Gracie immediately walked back out. She told me she was scared. we walked around for a few minutes, and I tried to explain the machines to her. SHE KNEW WHAT IT WAS. She looked at me and said " I know that's a breathing machine, Momma. I don't like it in there." Like the sweet girl she is, she did go in with us. She sat right by Aunt Fret and told her she loved her. She listened as I read to her from the Bible. When we left, she was a bit sad and subdued.
Later, she told her Grandpa that she had gone to see her Aunt Fret. She told him that " she doesn't get up and go sit in the big room anymore. She has a nice bed though and a machine to breathe. They keep it right next to her and she has a duck and a TV. Her hair is soft and she'll be happy with Jesus."
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Grace was born at 23 weeks in September of 2006. As a result of her extreme prematurity, she has hydrocephalus (VP shunt) and cerebral palsy. After 126 harrowing days in the NICU, she came home. Overcoming all the odds, she learned to walk, talk, and play like every child. On November 16th, 2009, our lives took another shocking turn. Gracie's shunt failed, and she suffered from a massive stroke. After 13 days in the PICU, 7 days in 1600, and 6 weeks at a rehabilitative hospital, Gracie is once again home. Now, we face SOME of the day to day challenges of parents with a brain injured child -re-learning, therapy, illnesses and seizures. Thanks for joining us on our journey!
"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
thou art my God ,
I will exalt thee."
Grace Elliana
"Even in the valley, God IS good."
Grace was born at 23 weeks in September of 2006. As a result of her extreme prematurity, she has hydrocephalus (VP shunt) and cerebral palsy. After 126 harrowing days in the NICU, she came home. Overcoming all the odds, she learned to walk, talk, and play like every child. On November 16th, 2009, our lives took another shocking turn. Gracie's shunt failed, and she suffered from a massive stroke. After 13 days in the PICU, 7 days in 1600, and 6 weeks at a rehabilitative hospital, Gracie is once again home. Now, we face SOME of the day to day challenges of parents with a brain injured child -re-learning, therapy, illnesses and seizures. Thanks for joining us on our journey!
"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
About Me
- Michelle
- "Whom have I in heaven but thee? and there is none upon earth that I desire beside thee.My flesh and my heart faileth: but God is the strength of my heart, and my portion for ever."
I am a born again child of the King, wife to John, mommy to Grace and Josiah. I started this blog to keep friends and family up to date while Grace was in the hospital. We are home now, but the work has really just begun. Now I share pictures, progress, and sometimes just feelings. Please, read with an open heart and mind.
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